Would you like to make $120 per hour to voice your opinions with Rare Patient Voice? Are you a patient or caregiver of someone with a health condition or disease? If so, you can join this cool market research company to participate in new paid surveys, interviews, and online communities. The best part is that you will receive $120 an hour! Continue reading to find out how this works.
For additional paid survey panels and market research companies, please feel free to join Real Surveys that Pay. This Facebook Group has new survey panels you can join daily to earn even more money when you share your thoughts and opinions on various topics, subjects, products, and more.
More about Rare Patient Voice
Rare Patient Voice is a company that was founded by Wes Michael who has been in the market research market for more than 40 years…20 of which are in healthcare market research. He has been interviewing and surveying patients, family caregivers, physicians, nurses, and patient advocacy group leaders about rare and non-rare diseases and medical conditions they have been diagnosed with.
This company recently celebrated its 10th anniversary since launching in the United States in 2013.
Is Rare Patient Voice Legit?
Yes, it is. Rare Patient Voice has paid over 10 million dollars to date to patients and family caregivers to participate in these kinds of market research studies. They also have an A+ rating from the Better Business Bureau. The only other market research panel I know of with this rating from the BBB is Survey Savvy.
A lot of people have commented online that Rare Patient Voice is one of the best companies to use for extra cash online because they offer great pay, generous rewards, and incentives plus the website is easy to navigate.
What kind of surveys will I take?
It depends on your condition(s) but they have hundreds of studies open for patients and caregivers that are available immediately. Here are a few you can check out below. Please remember that this is just a snippet of the types of studies Rare Patient Voice has available.
Acute Myeloid Leukemia (AML), Lymphoma, and Multiple Myeloma patients who participated in a clinical trial for NK Cell therapy
120-minute web-assisted phone interview, compensation is $240
Alzheimer’s Male Caregivers
90-minute web-assisted phone interview + confirmation of diagnosis, compensation is $160 for the interview and $50 for confirmation of diagnosis
Amyloidosis Patients and Caregivers
60-minute web-assisted phone interview, compensation is $120
Antisynthetase Syndrome, Dermatomyositis, Immune-Mediated Necrotizing Myopathy, Myasthenias patients
60-minute web-assisted phone interview, compensation is $120
Atrial Fibrillation (AFIB) patients
10-minute online survey, compensation is $25
Atrial Fibrillation (AFIB) patients diagnosed within the last 18 months
60-minute web-assisted phone interview plus confirmation of diagnosis, compensation is $120 for the interview and $60 for confirmation of diagnosis
Avoidant Restrictive Food Intake Disorder (ARFID), Cancer, Cerebral Palsy, Cystic Fibrosis, Irritable Bowel Syndrome (IBS) caregivers (Ages 18 Months to 3 Years)
90-minute web-assisted phone interview plus a 30-minute diary, compensation is $180 for the interview and $60 for the diary
Bile Duct Cancer (Cholangiocarcinoma), Biliary Tract Cancer patients
30-minute online survey and voice response, compensation is a $60 Amazon gift card
Bladder Cancer, Melanoma, Renal Cell Carcinoma, Stomach Cancer Patients & Caregivers
40-minute online survey, compensation is $80
Bone Marrow Transplant, Collagen Vascular Disease, Graft Versus Host Disease (GVHD), Organ Transplant, or Systemic Sclerosis (Scleroderma) patients and caregivers
60-minute web-assisted phone interview (WATI), compensation is $120
Breast Cancer, Multiple Sclerosis (MS), Paroxysmal Nocturnal Hemoglobinuria (PNH), Psoriasis Patients
20-minute online survey, compensation is $40
Breast Cancer patients (ages 35-75)
20-minute online survey, compensation is $40
Cervical Cancer patients (diagnosed within the last 5 years)
60-minute web-assisted phone interview (WATI) + 15-minute homework, compensation is $150
Chronic or Congestive Heart Failure patients (40-64 years)
60-minute web-assisted phone interview (WATI), compensation is $120
Chronic Kidney Disease (CKD) Patients
30-minute online survey + confirmation of diagnosis required (COD), compensation is $110
Chronic obstructive pulmonary disease (COPD) Patients and Patients/Caregiver Duos – Los Angeles and surrounding area
80-minute in-person interview, compensation is $240
Chronic Spontaneous or Idiopathic Urticaria patients
60-minute online interview, compensation is $125 (interview) and $50 (POC-proof of confirmation)
Chronic Urticaria patients
90-minute web-assisted phone interview (WATI) + COD (confirmation of diagnosis), $175 (interview) and $75 (POC-proof of confirmation)
Clostridium Difficile (C Diff) male patients
10-minute online survey, compensation is $25
Clostridium Difficile (C Diff) patients and caregivers
Online community; community members can earn gift cards for completing activities; members may also be chosen to complete a 60-minute web-assisted phone interview for a $100 reward
Cognitive Impairment African-American patients and caregivers
60-minute web-assisted phone interview, compensation is $120
Congenital Adrenal Hyperplasia (CAH) patients
This is a 5-minute survey for a medical history platform, compensation is a $25 gift card
Congenital Adrenal Hyperplasia Patient
30-minute web-assisted phone interview, compensation is $120
Coronary Artery Disease (CAD) patients ages 60-75
60-minute web-assisted phone interview + 10-minute pre-work, Compensation is $120 + $25 for pre-work
Crohn’s Disease (CD), Eczema, Juvenile Idiopathic Arthritis, Psoriatic Arthritis (PsA), or Ulcerative Colitis adolescent patients and caregivers (living in Philadelphia)
30-minute training & 75-minute interview or a 75-minute interview, compensation training is $100, the interview is $225
Crohn’s Disease Male Non-Caucasian Patients
90-minute web-assisted phone interview, compensation is $175 ($150 for the interview and $25 for confirmation of diagnosis)
Diffuse Large B Cell Lymphoma (DLBCL) patients
Duchenne Muscular Dystrophy (DMD) Caregivers of Patients under age 5
60-minute web-assisted phone interview, compensation is $120
Duchenne Muscular Dystrophy (DMD) Patients and Caregivers (Caregivers must be for Patients under age 30)
60-minute web-assisted phone interview, compensation is $120
Dupytren’s of the Foot, Fibromas, Ledderhose Disease, Plantar Fibromatosis patients
60-minute web-assisted phone interview, compensation is $120
End Stage Renal Disease (ESRD) patients & caregivers in the CA, OH, and TX area
120-minute web-assisted phone interview, compensation is $90
Eosinophilic Esophagitis (EOE) Caregivers (Ages 1-17) & Patients (Ages 18-60)
60-minute web-assisted phone interview, compensation is $120
Epilepsy/Seizures male patients & caregivers of male patients (ages 12-17)
30-minute online survey, compensation is $60
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS) patients
60-minute web-assisted phone interview (WATI), compensation is $120
Gout Patients
60-minute web-assisted phone interview, compensation is $120
Growth Hormone Deficiency patients and caregivers (3-12 years)
45-minute web-assisted phone interview (WATI) + COD (confirmation of diagnosis), compensation is $125
Heart Disease patients (Los Angeles, CA; New Orleans, LA)
In-person interview, compensation is $180/hr
Hemophilia A & B Patients & Caregivers
30-minute online survey, compensation is $60
Hemophilia B patients and caregivers
60-minute web-assisted phone interview (WATI), compensation is $120
Hemophilia patients and caregivers
60-minute in-person interview, compensation is $225
Hepatitis D patients
30-minute activities during a 2-3 week time period, compensation is $60
Hepatocellular carcinoma (HCC) Patients
60-minute web-assisted phone interview plus a homework assignment, compensation is $180
Hidradenitis Suppurativa patients ages 18-54
20-minute online survey, compensation is $60
Huntington’s Disease patients
This is a 5-minute survey for the medical history platform and the compensation is a $200 gift card to be paid by the client
IgA nephropathy (Berger’s Disease) patients
This is a 5-minute survey for the medical history platform and the compensation is a $200 gift card to be paid by the client
IgG 4-related disease (IgG4-RD) patients
60-minute web-assisted phone interview (WATI) and 60-minute focus group, compensation is $240
Infertility patients and donors
60-minute web-assisted phone interview, compensation is $120
Interstitial Lung Disease (ILD), Pulmonary Arterial Hypertension (PAH), OR Pulmonary Fibrosis (PF) patients (currently using or have used Tyvaso Nebulizer or Tyvaso DPI)
60-minute web-assisted Zoom interview (WATI), compensation is $120
Juvenile Arthritis (JA) or Giant Cell Arteritis (GCA) adolescent patients or caregivers of adolescents
60-75-minute in-person interview, compensation is from $150
Kidney Disease: Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN, ICGN, Ig-MPGN) patients & caregivers
60-minute web-assisted phone interview, compensation is $120
Lupus nephritis patients (18+)
60-minute web-assisted phone interview (WATI), compensation is $120
Lyme Disease patients diagnosed within the last year
60-minute web-assisted phone interview, compensation is $175
Metastatic Breast Cancer Patients
30-minute web-assisted phone interview, compensation is $60
Metastatic Breast Cancer patients
15-minute online survey, compensation is $30
Mitochondrial Myopathy Patients
60-minute web-assisted phone interview, compensation is $125
Mitochondrial Myopathy patients and caregivers
60-minute web-assisted phone interview, compensation is $120
Multiple Myeloma patients and caregivers
30-minute web-assisted phone interview plus a 15-minute homework assignment, compensation is $60 for the interview and $30 for the homework assignment
Multiple Sclerosis (MS) Patients under 35
60-minute web-assisted phone interview, compensation is $120
Multiple Sclerosis patients
25-minute online survey, compensation is $50
Multiple Sclerosis (MS) Patients who speak Spanish
20-minute online survey, compensation is $40
Myasthenia Gravis caregivers United States
45-minute online survey, compensation is $90
Myasthenia Gravis (MG) patients (diagnosed in last 2 years)
60-minute web-assisted phone interview (WATI), compensation is $120
Myasthenia Gravis (MG) Patients aged 50 and under-diagnosed within the last 3 years
60-minute web-assisted phone interview, compensation is $120
Neuromyelitis Optica (NMO) Patients United States
45-minute online survey, compensation is $90
Non-small cell Lung Cancer (NSCLC) Patients
40-minute online survey, compensation is $80
Non-small cell Lung Cancer (NSCLC) patients and caregivers
90-minute web-assisted phone interview (WATI), compensation is $250
Nontuberculous Mycobacterial (NTM) patients
Eligible study participants will be paid up to $450 ($300 for participation in a 2-hour study interview [can be completed in two 1-hour sessions] and $150 for an additional 1-hour study interview).
Ornithine Transcarbamylase Deficiency (OTC) patients & caregivers
60-minute web-assisted phone interview, compensation is $180
Ovarian Cancer Patients & Caregivers United States
15-minute online survey, compensation $80
Ovarian Cancer Patients & Caregivers United States
15-Minute online survey, compensation of $30
Ovarian Cancer patients (stage 3 or 4 currently using Zejula (niraparib)
A 15-minute online survey, compensation is $30
Paroxysmal Nocturnal Hemoglobinuria (PNH) patients and caregivers
This is a 5-minute survey for a medical history platform and the compensation is a $250 gift card to be paid by the client (after confirmation of diagnosis through medical records)
Pediatric Bone Marrow Transplant (BMT) (Stem Cell Transplant) caregivers for patients under the age 18
60-minute web-assisted phone interview, compensation is $120
Peyronie’s Disease patients
in-person interviews
Psoriatic Arthritis (PsA) non-caucasian patients
60-minute focus group, compensation is $120
Psoriatic Arthritis patients
20-minute online survey, compensation is $40
Relapsing Remitting Multiple Sclerosis (RRMS) Patients ages 18-30
30-minute online survey, compensation is $60
Relapsing Remitting Multiple Sclerosis (RRMS) Spanish speaking patients
60-minute web-assisted phone interview, compensation is $150
Renal Cell Carcinoma (RCC) Patients
30-minute online survey, compensation is $80
Rheumatoid Arthritis or Ulcerative Colitis patients
30-minute online survey, compensation is $50
Small Cell Lung Cancer patients
60-minute web-assisted phone interview, compensation is $150
Spinal Muscular Atrophy (SMA) Caregivers
45-minute online survey, compensation is $90
Spinal Muscular Atrophy Patients
30-minute online survey, compensation is $55
Systemic Mastocytosis Patients
20-minute online survey, compensation is $40
Tourette Syndrome caregivers
20-minute online survey, compensation is $40
Tourette Syndrome patients (ages 18-30) & caregivers (of patients ages 4-18)
60-minute web-assisted phone interview, compensation is $120
Ulcerative Colitis patients
10-minute online survey, compensation is $25
Vasculitis patients
90-minute web-assisted phone interview (WATI), compensation is $158
Wet Macular Degeneration Patients
60-minute web-assisted phone interview, compensation is $120
Who can join this panel?
Anyone who is a patient or caregiver of a family member diagnosed with a rare or non-rare health condition or disease. Rare Patient Voice accepts participants from the United States, Canada, the UK, Germany, France, Italy, Spain, Australia, and New Zealand.
How will I get paid?
Rare Patient Voice pays you by check or electronic payments for every survey, interview, and/or focus group you complete. The only time you will not receive cash is if the study tells you upfront you will receive a gift card but those are the exception and not the norm.
When will I get paid for my participation?
After the study is closed and the client confirms your participation, Rare Patient Voice will submit their checks for payment on Fridays. The checks go out by Monday or Tuesday. You will be happy to know that their checks never expire.
Please watch this video below to find out what you need to do if you make over $600 in a year as a participant.
How do I participate?
You first must join Rare Patient Voice here. After you are a confirmed member (completely free), you will receive invitations via email to participate in their virtual studies. Simply click on the link in the email from Rare Patient Voice to participate in the study.
They also have in-person studies but you are not obligated to take those.
Why I recommend Rare Patient Voice
I recommend you to join Rare Patient Voice because it is convenient to take part in their virtual studies but the pay is awesome! You also get an opportunity to share your thoughts on medical products and services. Even those who are on disability can earn extra cash without leaving their homes. If you are looking for an easy way to make money online, join Rare Patient Voice here.
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